Sunday, March 21, 2010

Part 1 of ?

Last updated this Friday, bright and early as can be read below.  That post expressed where I was Friday morning.  Only thing on my plate for Friday was to make it to the office for a Luekin shot.  For now, I am to get a daily shot through out the first parts of the chemotherapy, just to keep the white blood cell counts in check and immune system up to snuff.  So.... fast forward a bit, and I am in my extended legnth mid morning routine, and as explained in Friday's post, coping with a bit more pain.  TK picks me up and we make our way to Dr. Paloyan's office for the needed shot.  I spend the 15 min car ride picking my hair off the shoulders of my sweatshirt, wondering why I even have a sweatshirt on, as its nearly 60 degrees out.  My frustration is increasing from the amount of pain as well as being too warm for the clothes I have dressed in not to mention the feeling of my sheding hair down my sweaty back and neck.  Finally we arrive in drop off turnaround, I bail out of the PT cruiser and am greated with a strong scent of something electrical burning.  This is the second time that TK and I have noticed this, thats not good.  I can hardly get out of my own way... what the hell am I supposed to do if I need to get out of this car in an emergency?  The scenario's race through my head at an alarming rate, and the results are all the same...

(side note... pandora is great, http://www.pandora.com/)

I made my way in for the shot.  The nurses seems to notice a bit more struggle in my steps, it doesnt take long for the her to comment and I mention that something has to change, and that the past week has been tough, and I should probably get with Dr. Paloyan about increasing the medications I am on.  Simultaneously, my Mom, after reading the emails in that I mentioned in Friday's post, calls Paloyan's office to see if while I was there for the shot, the pain issue could be addressed.  About that time, the nurse comes back and mentions that she would like me to just hang tight for a bit, and she will talk with the doctor.  10 min later a  decision is made to get me into the hospital for pain management.    I honestly felt relieved and knew this was the best thing for me.

As of around 2pm Friday, I have been at Lakeland hospital, working with Dr. Stafford who has been in touch with Dr. Paloyan and I believe Dr. Jordan as well.  Ironically, the gentleman that takes care of me in the infusion clinic, works here on the 4th floor one weekend a moth, and this is his weekend.  So I am in good hands, hands that are familiar with my situation.  Basically, we are trying to get a diet or regiment of medications that will allow me to lead a comfortable life... that new "normal" I mentioned a few times before.  ALOT has changed since this current medication list was installed into my routine.  I have been through radiation, started chemo, my body has changed alot, and the meds changed very little.

I think we have taken the right steps this weekend so far, and am confident that we will get this whipped, just a little hiccup.  The pain friday was probably as bad as it has been at certain points, and today I am sitting here pretty content and looking forward to more great basketball on TV.  Thats a whole other post in itself, go SPARTANS.

I touched based on it a bit last week, but there is a few procedures that they are considering or I should say will be doing Monday, in hopes of providing more pain relief.  I will be here until Tuesday to recover from that.

As usual, when I get in here, we take over, ha.  Alot of good company, good people, snacks, treats, etc.  Its been great.  I havnt had much of a chance to sit down and take a deep breath which I think I will now.  I am actually here by myself for a bit while Stacy ran some errends.  Alot has happened, changed or will be changing in the next week or so, I will try to write more tonight, but like I said, it gets crazy in this little room from time to time, and I dont know what I will be able to sneek into the schedule. 

My hair is on its last leg, alot has fell out, more soon to come.

Its about lunch time, there are a few good stories I am leaving out, but time will only make em better!  Thanks again everyone for all you have done and continue to do.  I know one thing, its gotta be impossible for me to fail at anything with this much support behind me!

12 comments:

  1. Hopefully the procedures on Monday will help relieve all this pain Mike! I think about you all the time and feel so bad that you have to go through this. I keep texting Stacy to get updates. I hope I'm not bugging her too much! Goodluck tommorrow and I'll be in touch!

    ReplyDelete
  2. Mike,
    All I can say is I never have read anything so moving. You are a strong man. I keep you and Stacy in my prayers. You will get through this. Keep your attitude and keep writing. You give everyone more strength through your words. Your mom must be so proud of you.
    Renee Richardson

    ReplyDelete
  3. Our thoughts are with you as you face this weeks challenges. Hopefully they can help your pain. Don't worry about your hair, most of the guys shave their heads now anyway! I've passed your blog on to a couple more family members so know that we are all pulling for you!!


    Sue Rusch

    ReplyDelete
  4. Hi Mike! You don't know me, but I teach with Stacy. I have been keeping up with your blog, and am always amazed with your positive spirits and attitude! You have reminded me to stop and enjoy the little things in life. Keep strong, and know that there are many people out there who are praying for you!

    Heather Boyle

    ReplyDelete
  5. As mentioned above...yes I am so very proud. You've managed to take all of us along with you on this journey thru your writing. Family and strangers alike from all over the country.
    I have a sense there are hundreds now following along. Thank you for sharing and showing us some very important lessons we might have otherwise ignored as we hurried thru our days.
    I'm rambling...time for bed. Love you guys, I'll see you when I get to work. I'll be bring dad with me. mom

    ReplyDelete
  6. Hi Mike, God be with you Monday with the procedure our prayers are for GREAT SUCCESS. We will be up to see you in the afternoon We thought you probably had a lot of company on a Sunday. Grandpa Bill was not feeling all that well today just a lot of aches and no energy due to the chemo from Wed I am pretty sure he did eat quite a bit at dinner. Had fried chicken, potatoes & gravy etc. Your kind of meal right. We too are so very PROUD OF YOU & LOVE YOU SO MUCH. Good Luck tomorrow.

    Grandma Beverly & Grandpa Bill

    ReplyDelete
  7. MarkandRobinSchmaltzMarch 22, 2010 at 8:09 AM

    Mike we are always with you and thinking of you. I hope the meds keep helping with the pain. You are one strong willed person and it is only a matter of time before you are up and kicking again.Hang in there and enjoy all the basketball. Always with you. Loves and prayers Mark and Robin Schmaltz.

    ReplyDelete
  8. your right Mike about that Pandora, never heard of it but it is cool. Thanks for the great tip. Hang in there buddy, I'm praying for you, I've been praying for years to see a pileated woodpecker and one flew right into my front yard tree while I was standing on the front porch. It was sooo cool, the moral of the story is God is great and can do miracles. I'm praying for you . Patty

    ReplyDelete
  9. Praying for Dr. Jordan as he prepares for your surgery. I hope by this time tomorrow you will be on your way home feeling better. Let's do dinner out next week. We have to find a place that has good Pepper Steak Pepper Steak!
    Love Pam
    How about those Spartans!

    ReplyDelete
  10. Hi Mike,
    I've been thinking about you all day! The procedure today is sure to bring a great deal of relief as you make your way toward beating this disease! You are amazing in your strength and positivity and are well blessed with a loving wife and family! Thinking of you often!
    Marcia

    ReplyDelete
  11. Hi Mike,
    Still praying for you and your family every day! Just want you to know we have been thinkin of you and please remember we are only a few doors down or a phone call away! Please do not hesitate to ask for anything you or Stacy need. Just relax the best you can and keep in mind that so so many people are praying for you. Have great confidence that you will soon fight this unfortunate problem! We will keep up your lawn this Spring and Summer considering the fact we're only right down the way from you. If you ever need anything, or even just wanna take a ride to get out of the house, just call! :) :) :)

    Thinking of you,

    Jeremy and Kristy Lawrick

    ReplyDelete
  12. Hi Mike...ALWAYS impressed with your positive attitudue! It is certain to help you beat this! Hang in there and continue to lean on those who love you! Saying a prayer daily for you!!!

    Rachel and Dustin Kyncl and Kids

    ReplyDelete